Saturday, August 18, 2012


August 18th, 2012, at 8:30 in the morning, Lydia went in for surgery.

It was a last ditch effort to save her struggling life, to grab at the window of opportunity and give her one last chance to live.

Since we began fighting for Lydia, she has been through so much. If you haven't yet, read her Amazing Story. This little one has fought more than any baby girl should ever have to fight.

But today, TODAY, Lydia lays on a bed in ICU recovering. Recovering. Finally, for the first time in her life, Lydia is in ICU not fighting, but recovering.

Her fingers will no longer be blue. Her body will no longer deteriorate. Her life will no longer be a fight.

Today, Lydia has had her heart surgery.

Let's celebrate!


  1. ABSOLUTELY, Positively the best news to hear! While staying up late with Lydia on my heart and in my prayers I was SO blown away to hear the great news of her successful surgery in the wee hours of my morning. And as I awoke this morning to the sunshine beaming in the windows waking me up I cannot get outta my head the Newsboys' song, "God's not dead He is surely alive, He is roaring like a lion ... Let Heaven ROAR ... let Love explode ... A love so bold ... Let Hope arise and make the darkness hide!"
    Just absolute tears of JOY for Lydia the fighter and for everyone who has helped her in these hard days!
    Hugs to you Lydia!--Love, Valerie

  2. Hi Lydia

    My name is Jenna. You are a brave courageous fighter. you are a special miracle from god, a gift from above, earthly angel,and you are a smilen hero. You are full of happiness, life, smiles, joy, fun,love, and spunk.

    I was born with a rare life threatening disease, and have 14 other medical conditions, and developmental delays.

    I wrote this poem
    Each of us are Special
    Each of us different,
    No one is the same
    Each of are us are unique in our own way,
    Those of us who have challenges, we smile through our day.
    Those who of us who have challenges, we smile through our day.
    It doesn't matter what others say
    we are special anyway.
    What is forty feet and sings? the school chior